Patient and Public Involvement and Engagement Manager

Purpose of the post

Working within the Legal, Trust and Ethics team, the PPIE Manager will play a crucial role in advancing [Employer hidden — sign up to reveal]'s mission to build trust and confidence in health data research among patients, public, practitioners, and other key stakeholders. Central to this mission is the active involvement of patients and the public in shaping our work and decision-making processes, ensuring that their voices are integral to our efforts. The successful candidate will support [Employer hidden — sign up to reveal]'s Public Advisory Board and coordinate their collaboration with different teams across the Institute. They will also support other advisory groups essential to delivering our PPIE strategy. They will be willing to support activities and events led by PPIE colleagues and feel comfortable leading multiple projects at a pace in a complex organisation and interested in trialling, developing, and delivering innovative approaches to PPIE. Reporting to the Head of Public Involvement and Engagement, the PPIE Manager will be instrumental in building partnerships with patients, public communities, and practitioners. They will also support [Employer hidden — sign up to reveal]'s key initiatives, including our newly established Brain Health partnership involving organisations such as the UK Dementia Research Institute (UK DRI), Dementia Platform UK (DPUK), and the Alzheimer's Disease Data Initiative (ADDI).

Main responsibilities

• Support the implementation of the 2024-2025 [Employer hidden — sign up to reveal] PPIE strategy, including for the Brain Health initiative, working closely with PPIE colleagues and ensuring alignment with [Employer hidden — sign up to reveal] strategic objectives.
• Encourage the involvement and engagement of relevant patients and the public in our initiatives, integrating their perspectives on value and PPIE approaches.
• Develop strategies for building the public voice into the initiative priorities, products, and services, adhering to UK Standards for Public Involvement and good practices set by the Public Engagement in Data Research Initiative (PEDRI).
• Ensure equality, diversity, and inclusion considerations in PPIE methods and communication channels.
• Build and maintain relationships with teams across [Employer hidden — sign up to reveal] and with partner organisations, fostering collaboration and teamwork.
• Guide and support staff members in creating meaningful and innovative PPIE approaches including in the brain health field and liaise with colleagues across the Institute to increase visibility of PPIE activities through various channels (e.g., website updates, conferences, festivals, peer-reviewed journals, and other dissemination methods).
• Plan and oversee PPIE activities, such as focus groups, workshops, webinar, public events, and surveys.
• Create and monitor systems to evaluate and demonstrate the impact of PPIE efforts.
• Assist the Brain Health team in identifying and pursuing new collaborative opportunities that enhance the PPIE aspect of this initiative.
• Report on patient/public's experience of involvement/engagement, striving to improve responses through communications that reflect [Employer hidden — sign up to reveal]'s brand and values.
• Provide briefings and share good practices within [Employer hidden — sign up to reveal], highlighting examples that could positively influence the organisation's work.
• Share findings and insights through peer-reviewed publications and other dissemination channels.
• Collaborate with the [Employer hidden — sign up to reveal] PPIE Central team to develop a training programme aimed at upskilling staff in PPIE approaches.
• Act as an internal and external ambassador for PPIE to position [Employer hidden — sign up to reveal] as a leader in this area of work.

Knowledge, Skills, and Experience

Experience

• Experience of developing, implementing, and evaluating PPIE strategies and methodologies.
• Demonstrable examples of successfully using innovative approaches for PPIE.
• Experience of promoting the need and value of PPIE to a wide range of stakeholders, building relationships and acting as an advocate.
• Desirable – Experience of commissioning suppliers, managing procurement processes, and managing budgets.

Skills

• Ability to work autonomously and make decisions without supervision.
• Effective leadership skills with the ability to motivate and support a team.
• Influencing and coaching skills.
• Excellent relationship building and networking skills to build collaborative partnerships.
• Excellent interpersonal skills and ability to handle sensitive issues positively.
• Strong analytic skills with the ability to frame problems and solutions in a logical manner.
• Excellent organisational skills, with the ability to manage competing priorities in a fast-paced environment.
• Evidence of ability to meet tight and challenging deadlines.
• Ability to prioritise a wide range of demands.
• Resilience and adaptability.
• Excellent written and verbal communication skills with the ability to communicate effectively and confidently with people at all levels.
• Ability to work with complex scientific content, to explain concepts without technical jargon.

Knowledge

• Understanding of PPIE in an academic/research/healthcare environment and an interest in and awareness of the science, data, technology, and medicine sector.
• Knowledge of the public sensitivities of using data for research.
• Desirable – Experience of using Hubspot, Eventbrite and Survey Monkey.

Please note, as we are a UK-based organisation, applicants must be living in, and eligible to work in, the UK. We are unable to sponsor or take over sponsorship of an employment Visa at this time. We reserve the right to close this vacancy early if we receive sufficient applications for the role. Therefore, if you are interested, please submit your application as early as possible. We politely request no contact from recruitment agencies or media sales. We do not accept speculative CVs from recruitment agencies nor accept the fees associated with them.

Application

Apply via the link: or download the complete job description here.